Author Topic: Saying goodbye to CGL  (Read 434 times)

Foxbrush

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Saying goodbye to CGL
« on: January 29, 2019, 06:46:13 AM »
I am currently split from my husband of 13 years, and staying temporarily with my mum while we sort out finances and try to find myself and my dog a nice rental place somewhere.

The area where my mum lives is shared care with what looks like Aquarius, Phoenix Futures (neither of which I want dealings with than you very much as these services are NOT appropriate for someone who does not need intervention, keyworking or any of that crap anymore)  and the NHS. If you're at the stage I am at, most stable clients get moved on to their local GP. It looks very hopeful that we will be able to make the switch once my GP has fully registered me.

Now today we are having an appointment with CGL about them moving my script to a local pharmacy here, we've found the place and I have spoken to them, because it is a 40 minute journey on good days, with the possibility of being cut off due to bad weather conditions at some point. My mum is 71 and I really don't fancy her having to drive that distance in a blizzard or other severe conditions to collect my script every week!. Public transport is two trains or two hours on a bus, and busses are very anxiety provoking to me. I don't know where I would be without my mum bless her.

Now CGL are currently being subject to a rather big complaint I have raised via Release, about how they have treated me in relation to the benzo withdrawal and the fact I have a diagnosis of Asperger's Syndrome, for which I required specialist interventions I never got.

I would like to hope they do the decent thing and temporarily move my script over to this pharmacy while we wait on seeing my new GP, and don't give me more stuff to have to complain about.

I am ALSO tackling missing NHS medical records and serious clerical errors in them too. It's a nightmare, my childhood records prior to 2005 are all missing, my old surgery never found them. There is some really severe discretions in there regarding what drugs I have actually had issues with, for example, suggestions that I have used heroin, which I never, ever have.

Release have advised me that they SHOULD NOT tell me 'you're now out of the area, so therefore we cannot do this etc etc', they should move the script and wait further instructions from the GP.

I have some hope that the GP here will take this over, I am requesting that CGL provides me with a copy of my notes and forwards a copy on to my new GP practice.

The GP we need to see only works part time, so we won't be able to see her until next week, once my registration is complete. So CGL must understand this situation and understand how stressful this journey is for both me and my mum.

Leaving CGL will be the best thing to ever happen to me, I have been waiting on this moment for years, so I am doing it in such a way that is is not a leap from the frying pan to the fire.

Wish me luck x  :)
When they come downstairs from their Ivory Towers, idealists are very apt to walk straight into the gutter. ~Logan Pearsall Smith

OP8S

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Re: Saying goodbye to CGL
« Reply #1 on: January 29, 2019, 05:59:43 PM »
Good luck!

I hope that you get prescribed by your NHS GP, for some people it really helps to have their NHS GP prescribe all medications without having any other people or organisations involved. It's certainly has been the best option for me in the past. Currently our service is run by the NHS though using a Substance Misuse Recovery Team, that employs Recovery shrinks, Nurse & Recovery workers. When they started it up it meant that my GP who had been prescribing for me for years had to give up my meth script & leave it to the new service, so it was a bit like shared care but all NHS. Unfortunately I was one of the square pegs they were trying to hammer through a round hole, with lot's of hoops to jump through, an example of this was that my refusal to reduce my daily dose of meth meant that the SMRT shrink started to put pressure on me saying that they would be changing other meds, basically blackmail. Now after years of complaints I have been given back to my GP although my meth script is still signed by the SMRT service which I have to see every 4-6months. Personally I'd rather my GP was in charge of all prescriptions but can't complain as I have a good relationship with him & know that he's got my back & fully supports my MMT.
IMO stable patients who wish to be maintained & don't cause any hassle should be returned into general medical practice, if they don't have to treat patients on OST then a lot will gain no experience as far as drug treatment goes so both parties benefit from it.
Hope everything works out, let us know how  you get on.
" The problem with the world is that the fanatics are so sure of themselves while the wiser people acknowledge doubts "      Bertrand Russell

sapphire

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Re: Saying goodbye to CGL
« Reply #2 on: February 08, 2019, 01:07:37 PM »
How did it go Foxbrush? Well, I hope?

Foxbrush

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Re: Saying goodbye to CGL
« Reply #3 on: February 12, 2019, 06:39:01 AM »
Well this particular GP practice feels it is 'not within their skillset' to take over 6mg of Subutex which I am now reducing at my own pace because  I want to get rid of it all, get rid of DSPs, rid of scripts and the tie, be able to travel one day without having my little friend struggling to get through airports etc, it will be better to be rid of it now.

I spoke again with Release, who I must say are one of the most amazing organizations I have ever come across. We're looking at the options again, one is to try and stay put with CGL while I get myself off the remainder, which is still quite a lot but I do admit to needing to speed my reduction up bit now, this is my own choice and I will go with what my body tells me is the right pace, not anyone else.

Another option is to find a GP who does have it within their skillset to deal with it, I mean the letter I got back was the opinion of whoever, and does not reflect all GPs.

I obviously gather many people have been able to achieve this, so I don't see why I cannot. Maybe I have to convince the services here that because I also have Asperger's Syndrome etc, my case is too complex for them, and convince them to refuse to take me on on the grounds they won't do a good job of it for want of more polite words at  the time lol.

Anyway, because I survived cold turkey withdrawal from a very high dose of Benzos, as some of you know, I am quite collected and stoic about things, just tend to let things be if they don't compare with that, which nothing really does, not even splitting up from my husband and losing my home and the lot compared, it's all a walk in the park on a sunny day set alongside cold turkey benzo withdrawal.

Happy days, we all get there in the end  ;)
When they come downstairs from their Ivory Towers, idealists are very apt to walk straight into the gutter. ~Logan Pearsall Smith

Foxbrush

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Re: Saying goodbye to CGL
« Reply #4 on: February 12, 2019, 06:54:48 AM »
Another idea is to pay private for a single point of access, like a GP service, to just do the script and the testing etc, without all the other stuff that causes me issues. Looking into all the options and I have several more to play around with than I did this time last year!
When they come downstairs from their Ivory Towers, idealists are very apt to walk straight into the gutter. ~Logan Pearsall Smith

sapphire

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Re: Saying goodbye to CGL
« Reply #5 on: February 15, 2019, 01:11:40 PM »
Well, big congrats on getting off, and STAYING off the benzos! I've done it myself and it should be like a small piece of hell reserved for Dr's and treatment staff who forcibly reduce people, or will not arrange benzo detoxes in a safe, humane manner.
It took me about 12 months before I felt 'normal' again after my detox, so it really does take a huge toll on your body and your psyche.

At the moment, particularly depending on what area you live in, you could find it very difficult to find a GP willing to take over an OST script.
For example, in my area, the NHS trusts have told all the GP's that they cannot provide any form of OST for a drug treatment patient and that everyone must be referred to/back to their local DSP.

If your area's like that, you theoretically could 'borrow' an address from a neighbouring one and see if that worked?

I'm really glad you're doing OK following the cold turkey benzo detox though. They are particularly brutal and staying benzo free afterwards is a real achievement, you should be very proud of yourself!

OP8S

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Re: Saying goodbye to CGL
« Reply #6 on: February 18, 2019, 01:08:17 PM »
I like that, " special part of hell ". Would that be the same part that Theresa May is going to end up in, can't think of anywhere hellish enough for her & the whole Brexiteer brigade shambles.
" The problem with the world is that the fanatics are so sure of themselves while the wiser people acknowledge doubts "      Bertrand Russell

sapphire

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Re: Saying goodbye to CGL
« Reply #7 on: March 22, 2019, 04:25:25 PM »
How are you getting on Foxbrush? I was particularly interested to know if you got anywhere with a private GP?

Wasn't that Donald Tusk, OP, who was saying that Brexiteers should have a 'special place in hell' reserved?

I cannot bloody stand Jacob Rees Mogg, his views on women's rights alone are enough to make me detest the creepy little weasel.

OP8S

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Re: Saying goodbye to CGL
« Reply #8 on: July 11, 2019, 12:42:40 PM »
I can't stand British Politics, US Politics, nothing changes it's a system designed to keep the status quo. Sadly I can't do a thing about it & so  I just do  as much as what I want  to do as possible. Fuck 'em!
" The problem with the world is that the fanatics are so sure of themselves while the wiser people acknowledge doubts "      Bertrand Russell

sapphire

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Re: Saying goodbye to CGL
« Reply #9 on: July 26, 2019, 04:01:34 PM »
What fresh hell will BoJo have in mind for people in drug treatment?  I'm not anticipating anything positive!